Tag: Rare Find Foundation

• Against all odds

  

  The Adelaide based Rare Find Foundation, created by bereaved parents Anna Pak Poy and Marc Coupar, is on a mission to fight Tay-Sachs and Sandhoff disease, a rare genetic disease that until now mostly goes unnoticed by families until it’s too late.

  ontherecord

  February 2, 2020

  Community, Health, Long Reads

  Adelaide, Children, Genetic Disease, Pregnancy, Rare Find Foundation, Sandhoff, Tays-Sachs